Sedigheh Hamzai, the mother of Sina Alikhani, says that Sina has not received any medication and his condition is inappropriate.
Sedigheh Hamzai, also known as the ambassador of Asama’i children, said that Sina has been transferred to the intensive care unit after a major surgery.
She told the Rokna News Agency that so far we have not received any medication for Asama’i disease.
Mrs. Hamzai said about Sina Alikhani’s condition that he is in pain and has severe bleeding, and added that these conditions have arisen due to the lack of medication.
According to her, the President of Iran has met Sina three times and promised to help him stand on his feet and provide the necessary medication, but the medication for patients is still not fully and regularly available, and many patients have not received their medication.
She added that there are 800 Asama’i patients in Iran, and medication has been delivered to 300 of these patients as the top priority. The remaining patients have been placed in subsequent priorities.
Spinal muscular atrophy (SMA) is a genetic neuromuscular disease that results in the degeneration of spinal cord muscles, ultimately leading to loss of strength and muscle movement. Involvement of respiratory muscles causes respiratory problems and pulmonary diseases, and in some cases, it can be fatal for the patient.
