Gathering of SMA patients in front of the Presidential Institution
A group of SMA patients and their families gathered in front of the Presidential Institution today, February 27, demanding the provision of medication.
Nearly a year has passed since the import of medications like Spinraza and Risdiplam. Although there were distribution issues, the medications eventually reached the patients, offering them some relief. However, now the distribution and supply of these medications are facing problems again.
The issues with the supply and distribution of medication for SMA patients have not been resolved, and some patients along with their families gathered in front of the Presidential Institution to pursue their demand for medication.