SMA patients gather in front of the Presidential institution
A group of SMA patients and their families gathered today, February 26th, in front of the Presidential institution to demand drug supply.
Nearly a year has passed since the import of drugs such as Spinraza and Risdiplam, although there were distribution issues, the drugs eventually reached the patients, providing some relief. However, now the distribution and procurement of these drugs are facing new challenges.
The issues of drug supply and distribution for SMA patients have not been resolved, and some patients along with their families gathered in front of the Presidential institution to pursue their demand for drug supply.