The Ministry of Health’s tip for SMA patients: We don’t have the money, wait for the Iranian drug.
Ramek Heydari, the founder of the Dystrophy Association, only wants to shut the mouths of families. They said, ‘Where do we get the money from? How do they expect to distribute a drug that hasn’t even passed animal testing among patients?’
The founder of the Dystrophy Association stated that the Ministry of Health did not purchase another drug for the second time to reach second priority children. They only purchased the drug once in a shipment. During the protests organized by the families, the Ministry of Health announced that they would provide the drug to second priority patients, even though the first priority doses were also incomplete.
For example, a person who used to consume two doses of risdiplam syrup per month sometimes only takes one dose or doesn’t take any doses. On the other hand, the Ministry of Health and Medical Education stated that these drugs have not been effective.
Persian
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